Last Updated on October 1, 2020 by Darshan Modi
Everyone wants to remain young always and also try doing things which help them to be young enough but it not possible practically. Growth in age is essential for all of us but only when it is done gradually. Could you imagine extremely fast age growth? Here I am going to tell you about a girl whose physical age was eight times faster than normal human being. She is Hayley Okines, a teenager who looked like 100+ year old as she suffered from an extremely rare aging disease progeria.
Hayley Okines Superhuman Superpower
Hayley Okines suffered from Hutchinson-Gilford progeria syndrome which made her to experience an extremely fast ageing. She lived four years more than the life expectancy of a person with progeria which is just 13. With her courage, incredible spirit, strong determination and positivity, she challenged the likelihood.
Hayley Leanne Okines was born on 3rd December, 1997 in Arrington, Saint Leonards-on-Sea, Cambridgeshire, Sussex, England, UK to Mark and Kerry Okines.
When Hayley was born, she had fine blonde hair, blue eyes and she started walking when she was 10 months old but there was no development in her growth. In the year 1999 when Hayley Okines was two years old, she was diagnosed by doctors that she is affected by progeria which is a disease that caused her to age eight times faster than the average person. They said that her lifespan will be only thirteen years. This kind of people also suffers from hair loss, lack of growth, heart problems and loss of body fat.
Hayley lived in Sussex, England with her parents Mark and Kerry Okines, younger brother Louis Okines and younger sister Ruby Okines. To get new treatments, she often travelled to Boston, United States. Progeria Research Foundation funded for the treatment of Okines. Inspired by Okines some others also have raised funds. She took lot of legal drugs for her condition.
About Hayley Okines
Hayley Okines is a girl who suffered from premature ageing disease progeria. Her height was just 3′ 7″ (1.09 m). She is an author and a progeria activist, campaigner, outspoken advocate and fundraiser who created awareness about progeria to the public. She completed The General Certificate of Secondary Education (GCSE). She attended a full academic year in college on media studies. Her desire was to become the first person with progeria to work in the media. Hayley took part in a pioneering US drug trial for four years out of which she was able to survive 4 more years.
Positive viewpoint of Haley on life was inspiration for many people across the globe. She published two books namely Old Before My Time (Autobiography) and Young At Heart. From these books we can know her life story with progeria. She also appeared in various television shows and documentaries. The relationship between Hayley and her mother was so distinctive. Even though Hayley knows that her life span was short still she had many plans for her future. Her plans were to open a beauty salon with her friend Erin, to be a stylist, bring out her own perfume, to get Mini Cooper once she passes her driving test and to work in media.
Hayley was brave and spent her life happily as a normal girl despite of her condition. She used to swim with dolphins, met famous people like Justin Beiber, Nathan Sykes, Prince Charles and Kylie Minogue, wrote books, spread awareness about progeria and appeared in television shows. She was neither worried about dying nor about her condition rather just enjoyed the life as it was. She organized the annual reunion for the 16 European families affected by progeria. The only thing to put her down was that moment when she was not able to walk on her own due to her dislocated hips.
Life of Hayley Okines was filled with happiness and good memories and she was as a normal human in heart as per her own statement. She hated to be called as old and never felt that it would be good if she is not affected by progeria. At the age of 17, she died due to complications of pneumonia on 2nd April, 2015 in Bexhill-on-Sea, East Sussex, England. Her body was the equal to that of 104 years old when she died.
Genetic or Learned
The condition of Hayley Okines is genetic as she was born with a genetic disease progeria which causes accelerated ageing.
Names known by
- 100-year-old teenager
- Progeria campaigner
Hayley Okines Youtube Videos
- Extreme Aging: Hayley’s Story in Discovery Health Television specials
- Extraordinary Lives, a television documentary in UK
- Tous Différents (“All Different”, NT1), a French television show
- Hope for Hayley, an episode of the British series Extraordinary People
- Make Me Live Forever
- Tara Brown report on the Australian version of 60 Minutes
- The Kids Choir 2000 on the charity song Voices of Tomorrow
- Autobiography- Old Before My Time: Hayley Okines’ Life with Progeria
- Young at Heart: Hayley Okines – The likes and life of a teenager with Progeria